Coping with Autism

Sorry, for not posting earlier. Our computer crashed and while I am up and running again, we are borrowing a relative's older computer while we figure out what to do with ours. This unit doesn't have half the programs as ours does and so it's taking a while to get back up to speed. As for Peter: We saw Dr. Ben Carson of Johns Hopkins on the 9th, he agreed with the team at MCV that the cure was worse than the condition at this time. He did add that Peter's CT scan shows that there is currently room in his skull for growth of the brain. Dr. Carson, like Dr. Tye, warned us of what to look for if Peter should start to experience intra-cranial pressure (ICP) but otherwise reassured us. He felt that Peter had a very good prognosis. The thing that reassured me the most was that Dr. Carson mentioned that Peter currently had space showing for growth. I've been so aware of the fact that with the least bit of growth we could be looking at ICP but hearing that he has available ...

A little over a week ago, a perfect stranger e-mailed me to ask me to please get a second opinion about Peter's surgery. Well, you don't just shrug off something like that. You think, "Okay, as much as I like Doctor So and So or the the CF Team at Such and Such Hospital, maybe, just maybe, God is shouting in my ear." So, with her encouragement, we've set up an appointment with Dr. Ben Carson at Johns Hopkins (I mean, really, how do you top one teaching hospital? Go to another.) We have an appointment with him on May 9th, the only problem is he doesn't take our insurance so at this point we're paying for the appointment out of pocket ($276.00) and hope our insurance covers part of the bill. Either way we'll get his expert opinion and go from there. In case you are interested, the woman who e-mailed me has a 16-month-old son with metopic suture closure. His operation is going on as I write this and I hope Jeremy will be out soon with a round head-- albei...