A Date for the Cranio-Facial Clinic

Well, at this point we know we will be attending the cranio-facial clinic on March 17th. On that day, we will meet with 12 or 13 doctors who will go over Peter's records and CT scans. This group of doctors will include his neurosurgeon, plastic surgeon, a cranio-facial surgeon, etc. Part of the point of the clinic is to determine whether surgery is needed. Cranial synostosis is most often found in infants-- if it's not too bad, doctors sometimes wait and follow-up with x-rays and such to determine if the condition is worse or if it is causing problems. In Peter's case, we've pretty much have already been told that we are headed for surgery. The clinic for us will be an opportunity to hear what doctors recommend for the surgery-- in other words how extensive-- and for us to ask questions.

We were told that the closer we got to the clinic date, the neurosurgeon's office would have surgery dates to discuss. So, we are still in a state of "hurry up and wait."