Monday is D-Day
Okay, maybe more like C-F for Cranial-Facial day but we've put a great deal on hold until after the 17th so it is a bit like D-Day in that it marks a major date requiring significant, flexible planning (granted, the entire free world doesn't depend on it so that's a load off my mind).
And it complicates things since we don't know what our schedule will be like in the coming months.
When I spoke with the nurse in the neurosurgeon's office before Christmas, she said that she would likely call right before the clinic with a list of suggested surgical dates. I haven't heard from her and rather than be a pest we're waiting until Monday to see what the team says. I am hopeful that Peter won't have to have the surgery but we'll see. The day after the cranial-facial clinic I meet with Peter's teachers, et al. for his IEP meeting. So far, the rough draft suggests that in order to prepare him for mainstreaming in kindergarten they need him to go to school five days a week. Of course, this would start immediately following the IEP, if agreed to, and I would need to reschedule his Monday, 9 a.m. OT and Speech that he takes through Children's Hospital.
But altogether, Peter's speech is picking up again and his therapist at Children's is very happy with his progress.
I'll spend more time updating tomorrow or Friday.
And it complicates things since we don't know what our schedule will be like in the coming months.
When I spoke with the nurse in the neurosurgeon's office before Christmas, she said that she would likely call right before the clinic with a list of suggested surgical dates. I haven't heard from her and rather than be a pest we're waiting until Monday to see what the team says. I am hopeful that Peter won't have to have the surgery but we'll see. The day after the cranial-facial clinic I meet with Peter's teachers, et al. for his IEP meeting. So far, the rough draft suggests that in order to prepare him for mainstreaming in kindergarten they need him to go to school five days a week. Of course, this would start immediately following the IEP, if agreed to, and I would need to reschedule his Monday, 9 a.m. OT and Speech that he takes through Children's Hospital.
But altogether, Peter's speech is picking up again and his therapist at Children's is very happy with his progress.
I'll spend more time updating tomorrow or Friday.
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